Thursday, August 25, 2011

Sunday Come Out and Support a Cure for Prader Willi Syndrome

This Sunday at 9:00 at the Santa Monica Airport, the organization One Small Step is raising funds for the Foundation for Prader Willi Research (FPWR). The FPWR is dedicated to improving the lives of those with PWS by funding research which will lead to treatments to help our loved ones lead happy full lives. So far FPWR has raised $1.6 million and has a goal of funding the first ever NIH sponsored research plan for Prader Willi Research.

Please help us to spread the word and invite people to join our One SMALL Step Walk/Run on August 28 at Airport Park in Santa Monica. (5K or 1mile routes)

Here are the ways you can help us...

1. Sign up on line at: http://onesmallstep.fpwr.org/ca/santa-monica, to create a page only takes 5 minutes.

2. Then, email your friends and ask them to sponsor you. They can do this online too or just by sending you a check.

3. Ask your friends and family to come out and walk with us!! They too can create a fundraising page and send it to their friends too!

4. Or, just sponsor us by clicking on this link and make an online donation.http://onesmallstep.fpwr.org/dw/walking/location/36 


Please consider becoming a virtual walker by creating your page and emailing it out to everyone in your contact list and walk where you want to! 

Raise $40 and get a t-shirt, lunch and a concert with amazing children's musicians DiDi Pop didipop.com and Randy Kaplanhttp://randykaplan.com/

Raise $200 and get a chance to win an XBox 360!
Raise $500 and get a chance to win a vacation with airfare for two!!!



My Teen Topix will be at the event, introduce yourself to our photographer and say hello.  Who knows, you may be in the next My Teen Topix blog.  We will be covering the event with a big pictorial.  Please come and join us this Sunday. We WILL find a cure!

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